One of our previous blog posts already touched on the subject of loneliness. Back then, we focused on the issue of people with dementia and elderly people being lonely. It is no surprise that loneliness is an equally big problem for caregivers. We asked Tommy about why this topic is so important and what can be done to help with loneliness.
Last week we heard about some of the positive takeaways Tommy had while caring for his Mum. This week we wanted to hear about his struggles and problems. A lot of you will definitely relate and we would love to read your comments about what the hardest part for you is or was. Are you asking for help? Watch Tommy tell us about his experiences:
We especially liked the end of his answer. It’s quite impressive how Tommy always finds a way to look on the bright side and already starts looking at solutions for the challenges ahead.
Loneliness and isolation seem to be big issues which is why next week’s Video Blog will be all about that.
Have a great week everyone!
Welcome to the second Video Blog with Tommy. After your great reactions and feedback, we decided to post these weekly now! This time, we asked Tommy what he would advise someone to do after being diagnosed with dementia.
Have a look at what he said:
We spoke to a lot of counselors and have done a countless amount of reading, but none of the pieces of advice out there have really been so personal. We definitely believe that this approach is essential in this difficult and emotional time. Getting into this mindset and knowing what the essential things are should be the first thing to do, before taking any other steps.
It is nevertheless great that there are many good resources out there that can give you advice and information about dementia and the resulting "new normal". Also tips about treatment, medication and support are crucial. Some of our favorite resources are:
Alzheimer's Society - After a diagnosis
NHS - What to do after you've been diagnosed with dementia
Alzheimer's Association - Just diagnosed
A big "Thank You" to Tommy for speaking with us again. What would be/was the first step after a diagnosis for you?
Share it with us in the comments section!
The next video will be posted in a week, until then, we hope you are enjoying your MindMate App!
by Gabriela Matic
The whole MindMate Team hopes that you had wonderful holidays and are looking forward to a great year ahead.
This is just a short blog post in which we want to wish you a wonderful 2016. We also want to share a little message that all of us should keep in mind, not only this year but at all times.
We’ve been speaking to a lot of people about their Christmas Holidays and what made them special. Not having to go to work or getting nice presents was mentioned but compared to a different factor all of this seemed secondary.
What makes the holidays and life in general worth living is the people we spend them with. Weather it is family or friends, most people we spoke to enjoyed being around individuals they care about. Sure, there are people out there who prefer to be alone, but statistics show that most of us don’t want to be. Last December, the Samaritans are said to have received 244,000 calls from people suffering from depression and stress across Britain and Ireland. The numbers have probably not decreased this year.
We are not the biggest fans of New Year’s resolutions, but what all of us should try to put in practice is a kind and caring way of life.
Starting from today, let’s reduce the number of people who will have to spend next Christmas alone. Let’s care about each other every single day of the year.
One great project for example is: http://www.beafriendtoday.org.uk/
It’s really more about kindness, then any other form of present.
One of my favourite short stories about a little different Christmas present is Harper Lee’s “Christmas to me/My Christmas in New York”. The world famous author of “To Kill a Mockingbird” and “ Go Set A Watchman“ gets a present of a lifetime.
"One lonely Christmas - stuck in New York City and unable to get home to Alabama to see her family - Harper Lee spent the holiday with friends... and received a Christmas gift that would end up being a present to the entire literary world."
Read it here: CLICK HERE TO READ THE SHORT STORY
We hope you had a great start into the year!
If you haven’t downloaded our App yet, do it here:
Lewy Body Dementia is the second most prevalent form of Dementia following Alzheimer's. Yet few Doctors know much about it and the public is all but ignorant of the disease. I have an acquaintance at the local recreation center that had been diagnosed with Parkinson's. He does have some of the Parkinson's symptoms, but not the shaking. But his short term memory os nonexistent. I just heard that he finally has a confirmed diagnosis of LBD. I am happy the neurologist finally came to a decision.
This is not a story of a weeping and wailing tragedy for a perfect mother who has been transformed into mad Mrs Rochester by dementia. This is how things really are when you don't get along with your mother, she gets dementia and you are all she's got.
I'm pretty sure my mother’s dementia started after her double hip replacement. This sounds arbitrary but getting a firm diagnosis is. Her normal behaviour, which was to say the least always challenging, became increasingly worse when she came out of hospital. Traits, habits, routines now became obsessions; She'd phone me at work throughout the day asking me when I was coming home; no matter where she was she had to be back home at 4 o'clock; visitors were told to go home if they stayed beyond that witching hour so inevitably they stopped coming round and her world grew smaller.
"This is how things really are when you don't get along with your mother,